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Other useful links

Though these useful links may not relate to your country, you still might find the info handy. You're sure to be welcome at any of the social media sites where young people across the world share their experiences with a Fontan.

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Heartkids Australia Fact Sheets for Young People and Adults

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Transition for Young People, Royal Children's Hospital, Melbourne

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USA Meghan Roswick's (HLHS) Facebook page 

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Little Hearts Matter (UK) youth stories

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Fontan Registry Facebook page Australia and New Zealand

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Fontan Youth Support Group info, Australia and New Zealand

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My HLHS story - Meagan Houpt USA

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Unbeatable - Margaret Ellis Raymond's vlog living with tricuspid atresia

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LIttle Hearts Matter (UK) Youth Zone 

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Adult Congenital Heart Association

Useful links Fontan heart
Fontan heart health
Image by Aziz Acharki
Enjoy life with open heart surgery
Teens young adults Fontan heart
Live your best life with a congenital heart

About this site: I created Fontan and You in memory of our son William, who received the Fontan procedure and died from mental illness. If this site helps you navigate your life in even a tiny way, then I'll be happy. Please contact doctors or psychologists for your individual care and needs. If you have a Fontan, then you're extraordinary. I wish you every piece of positivity I have.

Cheers, Ros Marsden

Disclaimer – I don’t have medical/psychology qualifications. The information on Fontan and You is general and based on a mother's observations. However, I'm lucky to have Fontan specialists who have checked the content provided. It doesn’t address the personal facts of your Fontan or heart condition. Talk to cardiac experts, family and friends if you are acting on any information on this site to check that it applies to you.

Contact me here with any suggestions or feedback about this site. 

© 2020 Ros Marsden 

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